Kári Stefánsson steps down as CEO of DeCode Genetics

Kári Stefánsson, founder and long-time CEO of DeCode Genetics, has officially stepped down from his leadership role at the company he established nearly three decades ago. The announcement marks the end of an era for one of Iceland’s most influential scientific figures.

Leadership of the company will now be shared by Dr. Unnur Þorsteinsdóttir and Dr. Patrick Sulem, both veteran researchers at Icelandic Genetics. The pair will jointly oversee the company’s operations in Iceland.

Decades of legacy

Kári Stefánsson, 76, founded Icelandic Genetics in 1996. Under his guidance, the company became a global pioneer in the field of human genetics. In 2012, the U.S.-based pharmaceutical company Amgen acquired DeCode Genetics, integrating its cutting-edge research into broader medical applications.

Experienced new leadership

Dr. Unnur Þorsteinsdóttir joined Icelandic Genetics in 2000 and most recently served as the company's Director of Genetic Research. She is also a professor at the University of Iceland’s Faculty of Medicine and served as Dean of the School of Health Sciences from 2022 to 2024.

“It has been a privilege to contribute to research that put Iceland on the map in human genetics,” said Þorsteinsdóttir. “We still have a long way to go in understanding the wonders of genetics, and I feel as inspired today as I was on my first day.”

Dr. Patrick Sulem, a physician with a background in epidemiology and public health, joined the company in 2002. He previously led the company’s Clinical Sequencing Project and has played a significant role in research on genetic factors underlying numerous diseases.

“I am convinced of the power of genetics to advance medical science,” Sulem said. “Our focus will remain on turning scientific knowledge into tangible benefits for patients.”

Acknowledging a scientific pioneer

Jay Bradner, Amgen’s Executive Vice President of Research and Development, praised Kári Stefánsson’s foundational role.

“Dr. Stefánsson has played a pivotal role in establishing Icelandic Genetics as a global leader in the field. We are grateful for his contributions and remain committed to supporting Iceland’s position as a hub for world-class genetic research.”